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In May of 1999, we took Kacy back to Nemours Cardiac Center for her catheterization and hemi-fontan. The cath went well except her one leg did swell and turn purple,due to the cath site entry, but started getting better that night. The next morning we were allowed to carry our very sedated daughter to the door of the OR. She gave us such a silly,half crocked smile, we felt she was telling us everything would be okay. We went back to our room and prayed and waited. We were given periodic updates , like during the first surgery,with their progress and how Kacy was doing. This surgery took only 1 and 1/2 hours, which is what you pray for, because it's a good sign everything has gone as expected. We were able to see Kacy for a few minutes and were warned about swelling and possible headaches. Kacy had little of either, and was on her way to a speedy recovery.

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It was two mornings after her surgery, I was giving Kacy a bottle when I noticed she wasn't moving her right arm or hand at all. It had been all bandaged up since the surgery from one of the lines they put in, so we figured maybe that was the cause but asked the nurse to have a doctor check it. They unwrapped her arm, still no movement, did some pin pricks to it, then told us they wanted to send her down for a CT scan, for a possible clot. No one warned us this could occur. Why our sweet little girl? Hadn't she gone thru enough?

We followed her and the doctor down to the xray lab and waited in the hall, heavily praying to God it would be nothing. The doctor returned and told us there was a clot and they would have to put her on Heparin to dissolve it. We would have to wait and see the extent of problems this stroke had caused. Soon after they started the Heparin we started seeing movement in her right side. A neurologist came that evening to examine Kacy, look at the CT scan and advise us as to what exactly occurred. His first words after looking at the film and examining Kacy were "Good News".To hear those words after such a horrific day was an immediate relief. He said the clot occurred at the base leading up to the brain which meant minimal damage. She would need physical therapy but had a good chance of recovering 100%. Even with the setback of the stroke, Kacy still managed to do well enough to be out of the hospital in 8 days and on no medications!