To Heart Moms

Life with HLHS

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To Heart Moms

To all heart moms or dads or relatives or friends who have come to read our story, thank you. Thank you for understanding, for wanting to know. We were brought together by something so tragic. I don't wish any parent to have to deal with a child who is born with a birth defect, no matter how minor or how major. It matters to us. It matters that our children come into this world and be happy. No matter how long or short their precious life may be, they deserve happiness. They deserve to feel love. And we deserve them. For there is no greater gift then the gift of life.

I read, I listen, I cry and I smile. Sometimes I wonder why I continue to look on the internet, or be in support groups with others that are dealing with the same thing we are. When children pass away, I cry and endure days of emotional meltdowns. My heart aches. I go home and I smother my child with more kisses and hugs then she can take. I know I am one of the fortunate ones.

Then I read about birthdays, or milestones, and I smile. I feel good. I want to say hooray and congratulations. For I know that wonderful feeling.

I know why. I want to be there for someone who may need it. I want to share my experiences with others. They will make their own decisions. I can only be here to answer a question from my own experience or offer an ear to listen.

This is my world. For whatever reason it happened, it happened. And I do believe I am a better person from it.

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