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Ever since Kacy was born with HLHS, I found the need and desire to read
and communicate with the parents of other children who were born with a heart defect, and was especially interested in
those dealing with the same defect as Kacy. Hypoplastic Left Heart Syndrome is one of the most serious of all heart defects
and the future of the children living with this defect is so very uncertain. When your child is born or to be born with this
specific defect, most doctors give you three options to determine the fate of your child: Compassionate Care, 3 stage palliative open
heart surgeries, or a heart transplant. I have learned by reading others stories, that no one option is the right option
or the better option to choose. What matters is what choice is best for you and your family, for what you believe, for
what you think you are able to endure. For Kacy, our choice was that of the 3 stage open heart surgeries. Please feel free
to read about our story, from the decision, to the way we live life everyday, having a child with half a heart.
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